Tuesday, 4 July 2023

From aFAr - Life in the shadow of Friedreich's Ataxia

Henry and Me
How wonderful is life, experiencing the roller-coaster of human emotions that make up the celebration of life; laughing, loving and living life to the full! Young or old, we can pull out those wonderful memories of a moment in time that stay with us forever. We remember where we were, who we were with, what we were doing; a birth, a christening, a proposal, a wedding, a holiday, an adventure, a kitten, a puppy, a result, a success! That warm, heart swelling fuzzy feeling that washes over you, wishing you could live in that moment forever. We've all had those moments and they stay in our memory boxes forever to remind us that life is good...life is worth living.

And then there is the other side of life. When the bad news hits; and you remember where you were, who you were with, and what you were doing. The emotion that punches you in the gut, takes your breath away and cuts you like a knife. The complete contrast. Heart pounding, shock absorbing, disbelief and numbness that wounds the soul, and takes a little piece of you away.

This is the story of me and Henry. A story of our lives that we want to share with you. The hopes, the fears and everything in between. Life was so good, full of hope and optimism until one fateful day when our lives changed forever.